rare disease

On February 29th, we celebrated the ninth International Rare Disease Day, sponsored and coordinated by EURORDIS. Activities, taking place all around the World, ranging from an essay contest to ice-skating, had one main purpose and that is “to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives”.

The members of the Scientific Committee (SC) at present are: Antonio Federico (Chair) Claudio Bassetti, Alexandre Bisdorff, Michael Brainin, Christian Enzinger, Maurizio Leone, Jera Kruja, Maurizio Leone, Celia Oreja-Guevar, Evzen Růžička, Anthony H.V. Schapira, Antonio Toscano

by Antonio Federico, Chair of the EAN Scientific Committee A list of the Rare Neurological Diseases (RND) consists of more than 5000 disorders. Half of them has a neurological interest including the central and peripheral nervous system or muscles, or… Continue Reading