Ann Little: Prof Giunti, congratulations for winning the 2016 EFNA Neurology Advocacy Award for Health Professional. Your work in advocating for ataxia patients is highly commended. Could you briefly explain to us the main concept behind your Ataxia Centre in London, which has been put forward as an example of best clinical practice?
Paola Giunti: I established the Specialist Ataxia Centre in London over 10 years ago to address my patients’ needs. The ataxias are rare complex disorders, the majority of which are truly multi-systemic with a number of extra-cerebellar symptoms requiring multi-specialist care.
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Other News
Putting the neurology patient perspective at the heart of research and beyond
December 1, 2016A training Initiative from the European Federation of Neurological Associations 13 – 14 October 2016 – Dublin, Ireland For many years EFNA has run workshops on Health Technology Assessment and, lately, Pharmaceutical Policy – Pricing, Access and Reimbursement at the… Continue Reading -
This summer, EAN signed a Memorandum of Understanding with our colleagues at the European Federation of Neurological Associations [EFNA].
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As many of your will know, EAN works closely with our colleagues at the European Federation of Neurological Association [EFNA] – who so actively work to promote the patient perspective in all healthcare policy and provision in Europe. EFNA… Continue Reading
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Many thanks to all who attended our General Assembly [GA] in Copenhagen last month and to all who visited our stand at the Annual Congress of the European Academy of Neurology exhibition. You can read a report from the event and view the photo album by following the link in the news piece below.
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The 2nd Congress of the EAN includes the following networking programme and special sessions: Friday, May 27, 2016: EBN Examination.
The UEMS EBN examination will be held one day prior to the congress at Bella Center Copenhagen. The examination… Continue Reading -
Together Under the Umbrella for Huntington’s Disease A Public Awareness Day for: Patients, Carers, Families and Health Professionals When: Saturday, 28 May 2016 – 10.30am – 5.00pm
Where: DGI-byen, Tietgensgade 65 1704 Copenhagen V, Denmark As part of the “Together… Continue Reading -
How do neurological patients and their families experience stigma? That was the subject of a European Parliament meeting on 14 October, 2015 “Neurological, chronic pain and mental health conditions are not widely recognised or understood by the general population. Negative… Continue Reading
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Interviews
Interview with Ann Little, President of the European Federation of Neurological Associations
October 1, 2015Elena Moro (EM): We would like to join the EFNA Board in congratulating you with your election as the President of EFNA. We look forward at collaborating with you! Could you share with us your plans for the EFNA? Ann Little (AL): In recent years, EFNA has worked with great dedication on establishing a new strategic direction focussed on the four pillars of Advocacy, Awareness, Empowerment and Engagement. This is laid out in our Strategic Plan 2015-2020 document ‘Stronger Connected’. -
On Sunday, June 21, 2015, a Public Awareness Day was organised around the theme Diagnosing, Treating and Managing Headache and Sleep Disorders at the Neurology Lecture Hall in the Alte Nervenklinik at the Charité Campus. The meeting was a joint initiative by EAN and EFNA, the European Umbrella Patient group for neurological illness. In spite of the good weather on this Sunday afternoon, some 40 people attended the meeting.
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An initiaitive of the European Federation of Neurological Associations (EFNA) & Pain Alliance Europe (PAE) The meeting of EFNA and PAE took place on June 24, 2015 from 12.45 – 15.00h at the European Parliament in Brussels, Belgium. Romanian MEP… Continue Reading
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The networking event during the 1st Congress of the European Academy of Neurology took place on Monday, June 22nd, 2015 at the Orangery of Charlottenburg Palace (Schloss Charlottenburg), which is the largest palace in Berlin, and the only surviving royal residence in the city dating back to the time of the Hohenzollern family. It was built at the end of the 17th century and expanded during the 18th century. It includes much exotic internal decoration in baroque and rococo styles.
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Over the last months, Neuropenews has featured 8 chapters describing the beginning of neurology in Germany (chapter 1), a golden age at the end of the 19th century, the first 30 years of the 20th century with true scientific breakthroughs (chapter 2), the dark age before and during World War II (chapter 3), the slow and painful (chapter 4) and since the 1970ies accelerating recovery (chapter 5-8) of clinical neuroscience and neurology in Germany [1].
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Forum
New EFNA Member of the European Parliament Interest Group on Brain, Mind and Pain
April 1, 2015FNA is the umbrella organisation for more than 20 pan-European disease-specific neurology patient organisations. It will work with Pain Alliance Europe to push neurological and chronic pain conditions higher up the European agenda. -
Saturday, 31 May 2014 11.00-12.30 - Hamidiye Brain Disorders: The Communication Challenge Focus on Traumatic Brain Injury