efna

EFNA’s Advocacy Awards will take place during Brain Awareness Week, in March 2021.

2019 was a busy year for EFNA; a time when we began to put the building blocks in place for our new Strategic Plan which will run from 2020-2025

In celebration of World Brain Day 2020, the European Federation of Neurological Associations (EFNA) has published the results of its recent survey on stigma and neurological disorder. According to the World Health Organisation, stigma is a major cause of discrimination… Continue Reading

Prof. B. Bodini interviews Mrs. Joke Jaarsma, President of EFNA – European Federation of Neurological Associations

EFNA is focusing attention on young neurology patients during 2018. Their goal is to create a programme that assists young people in becoming advocates for their own disease areas.

WHEN: November 19 – 21, 2018
WHERE: Brussels, Begium
WHO: Anyone between the ages of 18 and 35, living in Europe, who is affected by a neurological disorder
The workshop will take place through the English language. A good level… Continue Reading

Outcome of the elections of the new Executive During the November 22nd, Board meeting the elections for the EBC new Executive took place. The new Executive is composed as follows: • President Prof. Monica di Luca (FENS)
• 1st Vice… Continue Reading

November 22, 2017 – European Parliament, Brussels Access to quality healthcare is a basic citizen’s right – yet it is still not a reality for all of us. Large health inequalities persist in the EU and many patients do not… Continue Reading

EARLS is a non–profit independent alliance of national Restless Legs Syndrome (RLS - also known as Willis Ekbom Disease) European patient organizations. Launched in November 2009, EARLS had six founding members: Belgium, Finland, Spain, Sweden, The Netherlands and the United Kingdom. France, Norway and Austria have now also joined.

The European Headache Alliance is a non-profit, patient umbrella group which was launched in 2006. Since then, the Alliance has grown to represent 25 migraine, cluster and other headache disorder patient groups from across the continent. EHA was created to speak on behalf of and to advocate for the rights and needs of the 80 million people in Europe living with a headache disorder.

2016 was a busy year for the European Federation of Neurological Associations [EFNA], with the launch of some of the organisation's biggest-ever independent projects.

Over the past number of months, member organisations of the European Federation of Neurological Associations [EFNA] have been profiled in EANpages. Flick back through previous editions to meet those groups advocating at the European level in the fields of Dystonia,… Continue Reading

Pain Alliance Europe (PAE) was established in November 2011 by a handful of enthusiastic patients organizations from across Europe that wanted to have pain recognised as a disease in its own right.

Ann Little (AL): Alistair, congratulations on winning an EFNA Neurology Advocacy Award in the Patient Advocate category. Can you tell us when, how and why you became involved in patient advocacy?  Alistair Newton (AN): Thank you.  It is an honour to have been chosen for this award, especially as I was part of the 'core' team of the EFNA Board during its formation and through its first decade.  In turn, I congratulate the current EFNA leadership on its successes and excellent development since then.