EAMDA is the European Alliance of Neuromuscular Disorders Associations and works to support and improve the quality of everyday life of people with neuromuscular disorders (NMDs).
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by Anna Sauerbier
EC Transparency Register
The transparency register is a database that lists organisations that try to influence the law-making and policy implementation process of the EU institutions. The register makes… Continue Reading -
A “National Action Plan 2025” was launched recently by the Danish government, with broad support from most political parties, and a funding of € 63 mill. for 2017-2019. -
by Anna Sauerbier
Machine intelligence for the analysis of Parkinson’s and Alzheimer’s
https://ec.europa.eu/digital-single-market/en/news/machine-intelligence-analysis-parkinsons-and-alzheimers
European Union announces new programme to improve Parkinson’s diagnosis
http://parkinsonslife.eu/european-union-announces-new-programme-to-improve-parkinsons-diagnosis/
Mental Health Europe (MHE) launches ‘Mapping and Understanding Exclusion… Continue Reading
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Members of the European Parliament – MEP Interest Group “Brain, Mind and Pain” How the EU can #MakeWorkWork for young people with neurological disorders
Ensuring good work for young people affected by neurological disorders and chronic pain conditions… Continue Reading -
Learn from Horizon 2020 to address unmet medical need in Europe
Viewpoint: BioMed Alliance Board member Prof. Ulrich Jaeger argues that EU funding is crucial in allowing medical researchers across member states to collaborate in the development of new treatments.… Continue Reading -
by Anna Sauerbier
World’s Brain Initiatives Move Forward Together
http://www.humanbrainproject.eu/en/follow-hbp/news/worlds-brain-initiatives-move-forward-together/
New trial shows Huntington’s drug could slow progress of disease
http://eurohuntington.org/2017/12/11/2328/
New scientific yardstick to help early diagnosis of Alzheimer’s disease
https://ec.europa.eu/jrc/en/news/new-scientific-yardstick-help-early-diagnosis-alzheimers-disease
Neurologists urge doctors to… Continue Reading
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Highlights from the European Parliament meeting ‘Ensuring equitable access to high-quality treatment in brain, mind and pain disorders – Case-Studies from across Europe’ on 22 November, 2017.
A meeting of the Members of the European Parliament… Continue Reading -
by Anna Sauerbier
The societal impact of pain (SIP) 2017 Steering Committee Meeting
New techniques target protein clumps linked to Alzheimer’s and cancer
Inside the solitary life of an Alzheimer’s sufferer
E-health Tallinn 2017: i-prognosis… Continue Reading
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The International Brain Tumour Alliance (IBTA) is a global network founded in 2005 as a worldwide community for brain tumour patient organisations, medical professionals and others in the field of neuro oncology. We bring together international experience and expertise with the aim of enhancing the well-being and quality of life of brain tumour patients and their families and promoting the need for more brain tumour research. -
Following the Board Meeting and General Assembly of the Alliance for Biomedical Research in Europe that took place on November 8, please find attached the Alliance’s joint statement with FEAM – Federation of European Academies of Medicine related to… Continue Reading -
by Anna Sauerbier
EMA’s support to Multiple Sclerosis Registry initiative
http://www.emsp.org/news-messages/jam-packed-september-updates-emsps-meeting-european-medicines-agency/ Breakthrough study could revolutionise MS treatment http://www.pharmafile.com/news/515381/breakthrough-study-could-revolutionise-ms-treatment Sniff test could detect Parkinson’s disease up to a decade earlier http://parkinsonslife.eu/sniff-test-could-detect-parkinsons-disease/ Press Release: Restless Legs Syndrome (RLS) is a… Continue Reading -
November 22, 2017 – European Parliament, Brussels Access to quality healthcare is a basic citizen’s right – yet it is still not a reality for all of us. Large health inequalities persist in the EU and many patients do not… Continue Reading -
Other News
Annual Congress of the German Neurological Society: a report from the young neurologist section of the DGN
by Anna Sauerbier This year the 90th annual Congress of the German Neurological Society (deutsche Gesellschaft der Neurologie – DGN) took place in the Congress Centre in Leipzig, Germany on September 20-23, 2017. The congress was attended by around 6,000… Continue Reading -
EARLS is a non–profit independent alliance of national Restless Legs Syndrome (RLS - also known as Willis Ekbom Disease) European patient organizations. Launched in November 2009, EARLS had six founding members: Belgium, Finland, Spain, Sweden, The Netherlands and the United Kingdom. France, Norway and Austria have now also joined.