Since its foundation in 1961, the International Bureau for Epilepsy (IBE) has grown and developed to become a global network of national epilepsy association in 103 countries across the globe. Based on population data, IBE chapters now cover more than 90% of the world’s population.
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Ann Little: Prof Giunti, congratulations for winning the 2016 EFNA Neurology Advocacy Award for Health Professional. Your work in advocating for ataxia patients is highly commended. Could you briefly explain to us the main concept behind your Ataxia Centre in London, which has been put forward as an example of best clinical practice? Paola Giunti: I established the Specialist Ataxia Centre in London over 10 years ago to address my patients’ needs. The ataxias are rare complex disorders, the majority of which are truly multi-systemic with a number of extra-cerebellar symptoms requiring multi-specialist care. -
Euroataxia is the federation of European ataxia patient groups which works to drive forward research and treatment of the ataxias. The Federation encourages the free flow of information between members on the latest research, foster and improve contacts between practitioners interested in the ataxias, and people with ataxia, promote co-operation on an international level, and raise awareness of ataxia among clinicians, scientists and society.
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The EFNA MEP Interest Group on Brain, Mind and Pain organised a breakfast meeting on 29th November 2016 from 8.30 – 9.30 at the European Parliament, Brussels. The meeting addressed “Make work work” aiming at improving access to employment for… Continue Reading
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On October 13th The European Federation of Neurological Associations (EFNA) held its annual Neurology Advocacy Awards.
These awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe.… Continue Reading -
In 2016, the European Federation of Neurological Associations [EFNA] launched its Training Initiatives for Neurology Advocates [TINA].
For many years EFNA has run workshops on Health Technology Assessment and, more recently, Pharmaceutical Policy – Pricing, Access and Reimbursement at the… Continue Reading -
Invisible disability is a term that captures a whole spectrum of hidden symptoms or challenges that are primarily neurological in nature. Many brain and brain-related disorders cause symptoms that are not obvious to an onlooker. These symptoms can include pain,… Continue Reading
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Many thanks to all who attended our General Assembly [GA] in Copenhagen last month and to all who visited our stand at the Annual Congress of the European Academy of Neurology exhibition. You can read a report from the event and view the photo album by following the link in the news piece below.
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