On 14 and 15 May 2024, the Belgian Brain Council (BBC) is organising a conference that will officially inaugurate the creation of an Altruistic Data Association.
Why is this?
This creation is the result of the application of the European Data Governance Act (DGA), which encourages the voluntary sharing of data for altruistic purposes such as scientific research or improving public services. This symposium will present the fruit of our interactions with the political world, scientific experts and the trust placed in the BBC by its 25 patient associations and 22 scientific societies.
Who is it for?
This symposium is aimed at a wide audience interested in data sharing in the health sector. There are 150 places available. The political debates and the session at which the patient associations will be speaking will be translated into French and Dutch in real time. The scientific session will be in English. Online participants will be able to ask questions via the Slido platform. Reservations will be open from 15 March 2024.
What’s on the agenda?
The programme includes the active participation of politicians, scientists, patient associations, members of the European Commission, the Belgian Health Data Agency and the Brain Councils of five other Member States who have decided to join forces. This will be a hybrid event, meaning that it can be followed online or in person.
Registration at: https://brain-council-symposium.idloom.events/brain-council-symposium-en/register
