Alzheimer Europe launches searchable web database of intercultural dementia care initiatives
Following the publication of its report on “The development of intercultural care and support for people with dementia from minority ethnic groups” in 2018, Alzheimer Europe has now launched an online repository of intercultural care initiatives, aimed at improving the situation of people with dementia and carers from minority ethnic backgrounds.
This searchable web database contains a wide variety of initiatives, covering care, support and diagnosis. These initiatives have been identified by the members of the expert working group that wrote the 2018 report and with the valuable input of the European Working Group of People with Dementia (EWGPWD).
The database will be further elaborated by the expert working group during 2019-2020, and the group will also turn its attention to influencing policy. If policy makers and high-level health and social care professionals are not convinced of the value and urgent need for intercultural care and support, and do not have a clear understanding of how to provide it, large sections of society will continue to receive inappropriate and inadequate dementia care and support. For this reason, Alzheimer Europe has decided to develop concise summaries of the most pertinent areas of its 2018 report, targeted at policy makers and at high-level health and social care professionals.
Alzheimer Europe would like to thank all the members of the expert working group, for their work on the 2018 report, and their ongoing work on the searchable database and upcoming policy summaries. The members (pictured – except for Jean Georges and Debi Lahav) are:
Jean Georges (LU), Daphna Golan-Shemesh (ISR), Dianne Gove, Chair (LU), Michal Herz (ISR), Siiri Jaakson (FIN), Ripaljeet Kaur (UK), Debi Lahav (ISR), T. Rune Nielsen (DK), Sahdia Parveen (UK), Charlotta Plejert (SWE), Mohammed Akhlak Rauf (UK) and Carolien Smits (NL).
We are also grateful to the EWGPWD for its important input to the report and database.
The repository of intercultural care initiatives can be found at: www.alzheimer-europe.org/Ethics/Database-of-initiatives-for-intercultural-care-and-support
We would be pleased to hear from readers about any other initiatives and relevant materials they may be aware of, in Europe. Please send any information or feedback to: dianne.gove@alzheimer-europe.org
Acknowledgements
The 2018 report “The development of intercultural care and support for people with dementia from minority ethnic groups” received funding, under an operating grant from the European Union’s Health Programme (2014-2020), and from the Robert Bosch Stiftung. The ongoing work of the expert working group, on the searchable database and on the policy summaries, is receiving funding from the Robert Bosch Stiftung.
Picture: 1st Meeting of Expert Working Group, Bradford, 18 May 2018