28 February 2019 is the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
The theme for Rare Disease Day 2019 is ‘Bridging health and social care’ focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.
Link: https://rarediseaseday.org/
Since Rare Neurologic Diseases represent the largest number of all these disorders, EAN is very active in promoting knowledge of these conditions with their members. The Rare Neurologic Disease Task Force has been active in the last year and prepared a summary of all 2018 accomplishments here.
