Last July the kick-off meeting of the EurDyscover Consortium took place on Zoom.
Coordinator is the University Hospital of Würzburg, Neurology department, Jens Volkmann and Chi Wang Ip.
EAN newly elected Treasurer Professor Marie Vidailhet and EAN members Professors Antonio Pisani, Robert Jech and Andrea Kühn are all members of this new dystonia research consortium.
Six expert centers across Europe is taking part in the 3-year project.
They are:
• University Hospital of Würzburg, Neurology department, Würzburg, Germany;
Jens Volkmann and Chi Wang Ip
• IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy;
Antonio Pisani
• Fundação D. Anna Sommer Champalimaud e Dr. Carlos Montez Champalimaud, Champalimaud
Research, Lisbon, Portugal; Albino Oliveira-Maia
• Charité, University Medicine Berlin, Dept. of Neurology, Movement Disorder and Neuromodulation
Unit, Berlin, Germany; Andrea Kühn
• Department of Neurology, Charles University, 1st Faculty of Medicine, Prague, Czech Republic;
Robert Jech
• Department of Neurology, and ICM research Center, Hôpital Salpêtrière, Paris, France;
Marie Vidailhet By using multiple methods, translational approach and transnational collaboration the consortium aims to discover the pathophysiology of dystonia – role of gene-environment interaction and common pathophysiological pathways. Learn more about the project here.
The consortium is funded by a grant of the European Joint Programme for Rare Diseases and was one of 22 successful applications of a total of 217 applicants.
The funding is € 1,6 million over three years.
Dystonia Europe, which is the umbrella organisation for 22 national dystonia patient associations in 18 European countries, will support the consortium with education and information of its work, recruitement of patients for trials etc.
