ERN-RND provides educational webinars on rare neurological and neuromuscular diseases – in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology.
The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks. The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
The webinars are for clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
| Date | Topic | Speaker | Institution | ERN |
|---|---|---|---|---|
| 24 October 2019, 13-14h CET | Diagnostic imaging in NMD: the basics | Pierre Carlier et al. | Raymond Poincaré University Hospital, Garches, France; … | EURO-NMD |
| 5 November 2019, 15-16h CET | Clinical approach to cerebellar ataxia | Bart van de Warrenburg | Radboud University Medical Center, Nijmegen, the Netherlands | ERN-RND |
| 21 November 2019, 14-15h CET | Myotonic dystrophies | Benedikt Schoser | Ludwig Maximilian University, Friedrich-Baur-Institute, Munich, Germany | EURO-NMD |
| 28 November 2019, 14-15h CET | Mitochondrial donation | Robert McFarland | Welcome Center Mitochondrial Research, Newcastle University, UK | EURO-NMD |
| 3 December 2019, 15-16h CET | Neuroacanthocytosis syndromes | Adrian Danek | Ludwig Maximilian University, Cognitive Neurology, Munich, Germany | ERN-RND |
| 5 December 2019, 14-15h CET | Classification of inflammatory myopathies | Olivier Benveniste | Pitié-Salpêtrière Hospital, Institute of Myology, Paris, France | EURO-NMD |
| 17 December 2019, 15-16h CET | Non-progressive congenital ataxia | Alfons Macaya | Hospital Universitari Vall d’Hebron, Paediatric Neurology, Barcelona, Spain | ERN-RND |
| 14 January 2020, 15-16h CET | tbd (Ataxia) | Paola Giunti | UCL – Queen Square Institute of Neurology, London, UK | ERN-RND |
| 21 January 2020, 15-16h CET | Immune-mediated choreas | Jan Lewerenz | University Hospital Ulm, Germany | ERN-RND |
| 3 March 2020, 15-16h CET | Ultrasound diagnostics for cervical Dystonia | Tobias Baümer | University of Lübeck, Institute of Neurogenetics, Germany | ERN-RND |
| 14 April 2020, 15-16h CET | Recognizing atypical parkinsonism | Wassilios Meissner | University Hospital Bordeaux, Institute of Neurodegenerative Disorders | ERN-RND |
For further information, please visit the ERN-RND website.
