European Working Group of People with Dementia involved in RADAR-AD website section on Patient Engagement.
This month, October 2019, the RADAR-AD project, in which Alzheimer Europe is a partner, has launched a Patient Engagement section on its website. The section includes information about the Patient Advisory Board (PAB), which is composed of members of the European Working Group of People with Dementia (EWGPWD) and supporters.
There is a ‘core’ group of six, which is more involved, and they are featured on the website. They are: Helen Rochford-Brennan, Chris Roberts and Stefan Eriksson (all three are EWGPWD members). The other three ‘core’ members are Janni (Stefan’s daughter and supporter), Jayne (Chris’ wife and supporter), and Nélida Aguiar (EWGPWD member, Idalina Aguiar’s daughter and supporter).
The sections were developed by Alzheimer Europe and members of the core PAB, with input from the other members of RADAR-AD’s work package 3. The PAB was set up in March 2019, since when the members and the core group have done a lot of work, which is featured on the website. You can see the RADAR-AD website section on Patient Engagement, here:
https://www.radar-ad.org/why-and-how
