18 January: Lancet commentary highlights recommendations developed by Global Alliance for Genomics and Health, Ageing and Dementia Task Team
The Lancet Neurology (February 2019 edition) has published a commentary by Adrian Thorogood et al. on “Openness, inclusion, and respect in dementia research”. It highlights an article entitled “Consent recommendations for research and international data sharing involving persons with dementia”, published in Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association in October 2018.
The recommendations were developed by the Global Alliance for Genomics and Health (GA4GH) Ageing and Dementia Task Team and were co-authored by Dianne Gove, Director for Projects, Alzheimer Europe (AE) and contributed to by AE Executive Director Jean Georges and European Working Group of People with Dementia (EWGPWD) Chairperson Helen Rochford-Brennan.
Lancet commentary: https://doi.org/10.1016/S1474-4422(18)30445-9
Recommendations:https://www.alzheimersanddementia.com/article/S1552-5260(18)30165-1/abstract
